This mixed methods project is nested within the baseline and incidence phases of the 10/66 Dementia Research Group population-based studies in Mexico, Peru, China and Nigeria.
The objective is to study whether, and if so how, the onset of care-dependence in an older household member leads to household impoverishment and vulnerability. Households with an older person who has developed needs for care (incident care households) will be compared with those with older residents with long-standing needs for care (chronic dependence) and no needs for care (control households). Detailed household interviews will be used to assess consumption, income and assets, including changes that might be attributable to the onset or intensification of care-dependence. Detailed case studies of selected households will be used to elucidate the pathways involved. An additional focus is intra-household effects and wider social dynamics:
- How is the care burden for dependent older people distributed across household members and wider kinship networks?
- What factors influence the distribution of the care burden inside and outside the household?
- How are decisions about the allocation of care made and justified?
- To what extent does this depend on the external policy environment, including the reach of social protection and health services?
Produced in 2013, A 17 minute short film (in Spanish with English subtitles) in which family carers of three older persons in Lima and Canete Province movingly describe the impact of caring for an older relative on their lives, their motivations, and hopes for the future. This is the first of four project films that have been realised. Footage from all four countries will be edited into a single film to be used for educational, awareness raising and advocacy purposes.
This film was used in edited form by Department of Health UK to illustrate the global impact of dementia at the G7 Dementia Legacy event in London, June 2014.